First day of the Horse year brought us luck! They came riding 6 yellow bicycles when they came on 3rd Feb 2014. Who are they? They are from Perak Kwang Tung, Persatuan Interaksi Kebudayaan Malaysia, Lions Club and some tourists from China.They were received by committee members and volunteers. They were given a briefing by our President, Dr. Koh Wai Keat. And they kindly donated a significant amount of money towards running of PPCS. They also promised to donate some used medical equipments in future. TQ3 for all the support.
From: Soon Woon (RJ-6) MHC-TR Nursing
Date: Thu, Feb 13, 2014 at 10:16 PM
Subject: thank you
To: “admin at ppcs.org.my”
My family visited the society in regards to my dad, Mr Soon Sun Hoe’s care . He was referred by Dr Chan of Fatima Hospital. I am very impressed with the prompt home assessment visit and would like to send my gratitude to all involved in his care now and the future. I know it is going to be a rough journey for him and the family but I also know that special people like you will make all the difference.
Fertility Treatment Centre
Croydon University Hospital
530 London Road
Date: Mon, Oct 14, 2013 at 1:52 PM
Subject: Appreciation Email from Haji Khairi’s Family
To: admin at ppcs.org.my
Dear Members of the Perak Palliative Care Society,
I am representing my family and my late father Haji Khairi Bin Haji Tasim. We would like to express our gratitude to Nurse Sue, Dato Dr Ziaudin Ahamed and the Society as well for the dedication and commitment rendered to my father during his final moments.
My late father was really touched and happy with the services provided especially by Nurse Sue and Dato Dr Ziaudin Ahamed. It helped to ease the burden he faced in fighting the cancer. Nurse Sue’s present on regular basis helped us in managing the health related issues arising from complication faced by my father . The attention, advices and camaraderie shown by Nurse Sue made the final months of my father’s life more meaningful and we were able to have wonderful moments together.
It has been 20 days since my father passed away, but we will never forget the kindness shown to us and especially to my father .We hope that the Society will continue to help others in similar situation like us and all the good deeds will be rewarded by God.
Although palliative care has been very diverse, we at Perak Palliative Care Society (PPCS) mostly deal with its adult population. Five of us from the home care team (Dato Dr Zia, Sr Sumathy , Nurse Yuin & Szu and I) were privileged to attend the eye opening and very educational Paediatrics Palliative Care workshop conducted by Hospis Malaysia.
Palliative experts in this workshop included Dr Ednin Hamzah (Hospis Malaysia), Dr. John Collins (Pain Medicine & Palliative Care, Australia), Dr Sylvia McCarthy (Hospis Malaysia), Datuk Dr Kuan (Paediatrics Consultant, Hospital Melaka) and the very iconic and passionate Dr Rosalie Shaw (Consultant Physician, Australia). Dr. Rosalie Shaw is most dear to many at PPCS.
Quality of life for the young includes their physical, psychological, social and spiritual needs. In Malaysia, Paediatric Palliative Care is still in its early stages and Datuk Dr Kuan stressed the importance of Team Outreach in a home care setting which currently is so much needed to reach the home bound children. She said home care team members must be aware of its team member’s strength and weakness in order to effectively provide palliative care on a holistic scale.
Almost all speakers spoke of one are in particular which was impossible to miss. It blared at us in every topic broached, THE NEED FOR EFFECTIVE COMMUNICATION. This includes skill vs attitude and skill vs personality. In this capacity a multidisciplinary team will be able to provide its best in patient care according to individual case presentation. Dr Rosalie Shaw at one point commented that the right care at the right time by the right team produces effective holistic care. She went on to say that it is important to drop ‘the attitude’ to solve problems and be compassionate towards patient and family. To recognise the difference between the needs of a patient and family by listening to understand as they are facing a grim life limiting condition.
There are many tools that can be used in Paediatrics Palliative Care as what Dr John Collins had highlighted and also by some of the other speakers. The professional care provider must uphold’ Ethics’ in palliative care and be aware of possible ‘Burn Out Syndrome’ for immediate remedy. We must be aware of verbal and non-verbal communication as it allows therapeutic relationships to be built.
The ability to diplomatically handle anguish questions raised by family over their beloved children is necessary. So SHUTTLE DIPLOMACY (a word I have come to like very much) is by itself a great tool in palliative care. The care provider talks to one party then talks to the other party or parties seperately in order to get any issues within the family or patient’s circle settled amicably.
In conclusion, it is very important to be aware that sometimes we as Palliative Care providers on the whole must be prepared to change ourselves if and when we come across a condition where we are not able to change the situation. We were reminded that WE ARE MEDICINE to our beloved patients and consolation to their family.
At the end of the workshop, the five of us bonded with communication and understanding and vision to contribute our skills to PPCS to the best of our abilities.
Chandrika P Choo
Perak Palliative Care Society
This gallery contains 27 photos.
On 27th October 2103, PPCS held a Charity Food Fair to raise funds for carrying out our activities. The pictures in this gallery will tell you a lot of stories. Just move your mouse over the pictures for the captions. … Continue reading
PPCS is run by volunteers from the community for the community. Provides FREE Palliative Care services irrespective of clients background such as religion, race or political ideology. This service is made possible by donations. This food fair is another initiative by PPCS to raise funds for its activities.
Can you Help?
You can help by
1. Donating Food Stuff for sale by PPCS on that day.
2. Buy Coupons which are already available and will also be available on that day.
3. Visit our Food Fair and Buy Food in the fair. 100% of funds raised will be chanelled to PPCS activities.
HELP US TO HELP PROVIDE FREE PALLIATIVE CARE FOR THE COMMUNITY.
INTRODUCING PALLIATIVE MASSAGE THERAPY (PMT) TO HOSPICE AND PALLIATIVE SERVICES IN MALAYSIA BY
PERAK PALLIATIVE CARE SOCIETY
By Chandrika P. Choo
In recent years (approximately the past 15 years or so), there has been a great evolution in cancer care for supportive intervention to those in need of hospice and palliative attention. This integrated intervention has proven to be most useful with patients presenting with pain, anxiety, loss of sleep, depression, mood disorders, stress, nausea and fatigue. These are criteria set by AMTA (American Massage Therapy Association) and S4OM (Society 4 Oncology Massage) where Massage adaptations are required for fatigue, peripheral neuropathy, low blood cell counts, blood clots, bone pain, bone metastases, radiation or surgery, removal of lymph nodes, lymphedema, medications, medical devices and late effects of treatment.
Those under Hospice or Palliative care have immensely benefited from this integrated intervention which is evidence based on numerous studies conducted by leading oncology research bodies.
Perak Palliative Care Society has introduced Palliative Massage Therapy to its clients since late 2010, a Pilot Project in a Supportive Allied Health Care provision to its palliative clients.
This intervention is also knows as Oncology Massage or Cancer Massage which aims to deliver comfort and relaxation through touch and largely aims at pressure scales to connect the body and mind in a reciprocate manner in order to improve local musculoskeletal symptoms, mood state and pain threshold. Here, displacement of pressure includes skin, fascia, muscle, blood vessel, nerves, joint and bone. However the above pressure scale is not an absolute quantification of massage pressure; because pressure is subjective, it is delivered differently by different therapists according the client condition. This is further elaborated by Dr S M Sagar in his article, Massage therapy for cancer patients: a reciprocal relationship between body and mind
Massage in general is a generic term for a variety of techniques that involve touching, pressing, kneading and manipulation of the soft tissues of the body for therapeutic purposes (Calvert 1992; Jackson 1993). There are many types of massage, (Russell 1994) available which aims at client choice to choose which technique is most suited and comfortable which involves Physiological and Psychological Effects. The history of massage dates back to as long as human beings have existed with multitudes of methods from almost all culture, religion and ethnicity. There is vast evidence which is easily available in the net.
Having combined the art and science of touch, PMT creates a safe, effective massage session for people with cancer. This is a modification of massage techniques which allows massage therapists to work safely with effects of cancer and cancer treatment. When a massage therapist works with a medically frail patient or one who is terminally ill, the work performed takes on a much different purpose when compared to a healthy client coming in for health maintenance purposes. Often the touch is much lighter and offered as much for psychological comfort as for easing physical pain. In many situations the only touch they have received has been either cold and clinical or painful. Simply being there and holding a person’s hand, or gently rubbing his or her back can soothe anxiety and increase comfort.
One of the benefits a massage therapist might consider is to teach family members how to offer comforting touch to the hospice or palliative patient and others interested in it. This allows the family member to be involved in the care of their loved one as the massage therapist will not be at the patient’s home for hours on end, where else family members might. Rather than feeling frustrated and helpless just sitting there, a family member will be able to give that gentle touch to a loved one. Being able to feel at ease touching a loved one with healing intent can go a long way in reducing the feelings of powerlessness in a life-altering situation
Another important aspect in working with chronically ill or terminal clients is making sure the massage therapist has a thorough knowledge of treatment plans by other team members, which would include knowing the type of medications being given and the potential for massage either increasing or reducing their effects. This would be true in both hospice and palliative according to situation where in a palliative care, light Swedish massage might be given to someone receiving chemotherapy or in hospice care where even more passive massage might take place.
Providing massage to very ill clients or to those who are in the last months or weeks of life is much different than massage for those who are healthy or suffering from life’s daily aches and pains. Compassion and patience are the main tools – with warm, healing hands coming in a close second. The rewards are many and the emotions can be intense. Being well prepared for this important work is vital.
We at Perak Palliative Care Society will continue to uphold the spirit of care and live up to our mission statement.
Massage at PPCS Centre
Massage at a client’s home
Clients arriving, some by taxi. Some were accompanied by family including children. Clients introduced themselves with short stories. Some were translated by our volunteer. Project of the day was recycling used paper. It was explained by a resource person. Then a step by step demo was done. This was followed by all the clients trying to make paper from used paper. The other activity was birthday celebrations. 3 of the clients celebrated birthday. The last activity was none other then food. High Tea was served.
Venue: Burps & Giggles
Dates: Saturday 13th July 2013 & Sunday 14th July 2013
Time: 9 am to 4 pm
You are invited to buy handicrafts and Salted chicken
Funds collected will go to PPCS.
Sunshine hour activity at PPCS on 23rd May 2013. Organised by volunteers. 25 clients attended. Main project of the day was for each of the clients to make a picture frame. Enough materials were provided by the organisers. After a briefing clients started of producing their master pieces with own creativity. Some of them were very creative and decorative while others needed a helping hand from volunteers. The clients were allowed to bring home their picture frames. Additional activity were birthday celebrations and nutritional input.